10.6084/M9.FIGSHARE.20106364.V1
Line Kessel
Line
Kessel
Rigshospitalet
University of Copenhagen
Jakob Kjellberg
Jakob
Kjellberg
Kamilla Nissen
Kamilla
Nissen
Anette Rasmussen
Anette
Rasmussen
Morten la Cour
Morten
la Cour
Childhood-onset retinal dystrophies reduces life-time income by one third - an individual based socio-economic analysis
<p>The aim of this study was to evaluate lifetime income, educational level and workforce participation in patients with childhood-onset inherited retinal dystrophies (IRD).</p> <p>The registry-based study using national, Danish databases on education, income, employment and social benefits in a cohort of 515 patients with childhood-onset IRD and without severe systemic comorbidities matched 1:4 to an age- and sex to a control sample of the Danish background population. Socio-economic status was modelled with focus on grade mark points after primary education, highest attained education at 30 years or age, employment and unemployment rate, disability pension and lifetime income.</p> <p>At 30 years of age, the proportion of those who had primary education as the highest achieved level was higher in the IRD group (35.4% versus 18.7%) and they were more likely to be receiving a disability pension (OR 11.77) or be unemployed (OR 6.63). Those at work had the same number of work hours as the control group, and the same proportion had obtained a Master or PhD degree (14%). At 30 years of age, income earnings were lower in the IRD group and the lifetime income was reduced by 30%.</p> <p>A few among those with childhood-onset IRD were able to obtain high educational levels, and many were assigned a disability pension from early adulthood or were unemployed, resulting in a markedly reduced lifetime income although grade mark points from primary education were comparable, suggesting that the difference was not explained by intellectual differences between the groups.</p>
Medicine
Biotechnology
59999 Environmental Sciences not elsewhere classified
Ecology
Sociology
69999 Biological Sciences not elsewhere classified
Science Policy
Taylor & Francis
2022
2022-06-21
2022-10-19
Journal contribution
222672 Bytes
10.1080/13816810.2022.2089359
10.6084/m9.figshare.20106364
CC BY 4.0