{
"id": "https://doi.org/10.6084/m9.figshare.16920194",
"doi": "10.6084/M9.FIGSHARE.16920194",
"url": "https://tandf.figshare.com/articles/dataset/Translation_cultural_adaptation_and_validation_of_a_screening_test_for_cognitive_and_behavioural_changes_in_amyotrophic_lateral_sclerosis/16920194",
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"ris": "DATA",
"bibtex": "misc",
"citeproc": "dataset",
"schemaOrg": "Dataset",
"resourceType": "Dataset",
"resourceTypeGeneral": "Dataset"
},
"creators": [
{
"name": "Taule, Tina",
"givenName": "Tina",
"familyName": "Taule"
},
{
"name": "Morland, Annbjørg Spilde",
"givenName": "Annbjørg Spilde",
"familyName": "Morland"
},
{
"name": "Aßmus, Jörg",
"givenName": "Jörg",
"familyName": "Aßmus"
},
{
"name": "Tysnes, Ole-Bjørn",
"givenName": "Ole-Bjørn",
"familyName": "Tysnes",
"affiliation": [
{
"name": "Haukeland University Hospital",
"affiliationIdentifier": "https://ror.org/03np4e098",
"affiliationIdentifierScheme": "ROR"
},
{
"name": "University of Bergen",
"affiliationIdentifier": "https://ror.org/03zga2b32",
"affiliationIdentifierScheme": "ROR"
}
]
},
{
"name": "Rekand, Tiina",
"givenName": "Tiina",
"familyName": "Rekand",
"affiliation": [
{
"name": "Haukeland University Hospital",
"affiliationIdentifier": "https://ror.org/03np4e098",
"affiliationIdentifierScheme": "ROR"
},
{
"name": "University of Gothenburg",
"affiliationIdentifier": "https://ror.org/01tm6cn81",
"affiliationIdentifierScheme": "ROR"
}
]
}
],
"titles": [
{
"title": "Translation, cultural adaptation, and validation of a screening test for cognitive and behavioural changes in amyotrophic lateral sclerosis"
}
],
"publisher": {
"name": "Taylor & Francis"
},
"container": {},
"subjects": [
{
"subject": "Medicine"
},
{
"subject": "Neuroscience"
},
{
"subject": "Sociology"
},
{
"subject": "FOS: Sociology",
"schemeUri": "http://www.oecd.org/science/inno/38235147.pdf",
"subjectScheme": "Fields of Science and Technology (FOS)"
},
{
"subject": "Hematology"
},
{
"subject": "110309 Infectious Diseases",
"schemeUri": "http://www.abs.gov.au/ausstats/abs@.nsf/0/6BB427AB9696C225CA2574180004463E",
"subjectScheme": "FOR"
},
{
"subject": "FOS: Health sciences",
"schemeUri": "http://www.oecd.org/science/inno/38235147.pdf",
"subjectScheme": "Fields of Science and Technology (FOS)"
}
],
"contributors": [],
"dates": [
{
"date": "2021-11-02",
"dateType": "Created"
},
{
"date": "2022-11-21",
"dateType": "Updated"
},
{
"date": "2021",
"dateType": "Issued"
}
],
"publicationYear": 2021,
"identifiers": [],
"sizes": [
"1789269 Bytes"
],
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"rightsList": [
{
"rights": "Creative Commons Attribution 4.0 International",
"rightsUri": "https://creativecommons.org/licenses/by/4.0/legalcode",
"schemeUri": "https://spdx.org/licenses/",
"rightsIdentifier": "cc-by-4.0",
"rightsIdentifierScheme": "SPDX"
}
],
"descriptions": [
{
"description": "To describe challenges of translating and culturally adapting the Edinburgh Cognitive and Behavioural Amyotrophic Lateral Sclerosis (ALS) Screen into Norwegian (ECAS-N), evaluate its content validity; provide age- and education-balanced norms for verbal fluency and cut-off values for abnormal performance. Translation to Norwegian and back-translation to English complied with standard methods. Patients and ALS experts evaluated the relevance, comprehensiveness and comprehensibility of the translated ECAS (ECAS-N). Content validity indexes at the item level (I-CVI), scale level (S-CVI) and inter-rater agreement were calculated. Performance of controls determined norms for written and spoken verbal fluency (n = 559) and cut-off scores for abnormal performance (n = 85). High levels of content validity was achieved for all items of the ECAS-N, I-CVI, S-CVI and inter-rater agreement was 87.5%. Age- and education-balanced norms for written and spoken verbal fluency were produced. Cut-off scores of abnormal performance were slightly lower than the original ECAS. The ECAS-N holds promise for detecting cognitive and behavioural impairment in Norwegian patients with ALS. Cut-off scores are situational and could slightly vary between different cultures. The ECAS-N can be used in international research, but researchers should be aware of the differences between the tests applied in the studies.Implications for rehabilitationThe ECAS-N, a Norwegian version of the English-language ECAS was produced for clinical use in Norway.Rigorous translation methods were used, and expert-judged modifications were made for Norwegian-specific culture and language nuances.Determination of ECAS-N cut-off scores for abnormal cognition was guided by a biostatistician, are slightly lower than the original ECAS, and are based on results from an objectively calculated number of healthy Norwegians.A nuanced picture of cognitive impairment in ALS drawn from a well-developed scale as the ECAS-N can contribute to a management process better tailored to patients’- and carers’ individual needs. The ECAS-N, a Norwegian version of the English-language ECAS was produced for clinical use in Norway. Rigorous translation methods were used, and expert-judged modifications were made for Norwegian-specific culture and language nuances. Determination of ECAS-N cut-off scores for abnormal cognition was guided by a biostatistician, are slightly lower than the original ECAS, and are based on results from an objectively calculated number of healthy Norwegians. A nuanced picture of cognitive impairment in ALS drawn from a well-developed scale as the ECAS-N can contribute to a management process better tailored to patients’- and carers’ individual needs.",
"descriptionType": "Abstract"
}
],
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"relatedIdentifier": "10.1080/09638288.2021.1980621",
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