{"data":{"id":"10.6084/m9.figshare.5719342","type":"dois","attributes":{"doi":"10.6084/m9.figshare.5719342","prefix":"10.6084","suffix":"m9.figshare.5719342","identifiers":[],"alternateIdentifiers":[],"creators":[{"name":"Barros, Alina Lúcia Oliveira","nameType":"Personal","givenName":"Alina Lúcia Oliveira","familyName":"Barros","affiliation":[],"nameIdentifiers":[]},{"name":"Barros, Amanda Oliveira","nameType":"Personal","givenName":"Amanda Oliveira","familyName":"Barros","affiliation":[],"nameIdentifiers":[]},{"name":"Geni Leda De Medeiros Barros","affiliation":[],"nameIdentifiers":[]},{"name":"Santos, Maria Teresa Botti Rodrigues","nameType":"Personal","givenName":"Maria Teresa Botti Rodrigues","familyName":"Santos","affiliation":[],"nameIdentifiers":[]}],"titles":[{"title":"Burden of caregivers of children and adolescents with Down Syndrome"}],"publisher":"SciELO journals","container":{},"publicationYear":2017,"subjects":[{"subject":"160508 Health Policy","subjectScheme":"FOR"},{"subject":"FOS: Political science","schemeUri":"http://www.oecd.org/science/inno/38235147.pdf","subjectScheme":"Fields of Science and Technology (FOS)"},{"subject":"FOS: Political science","subjectScheme":"Fields of Science and Technology (FOS)"}],"contributors":[],"dates":[{"date":"2017-12-20","dateType":"Created"},{"date":"2017-12-20","dateType":"Updated"},{"date":"2017","dateType":"Issued"}],"language":null,"types":{"ris":"DATA","bibtex":"misc","citeproc":"dataset","schemaOrg":"Dataset","resourceType":"Dataset","resourceTypeGeneral":"Dataset"},"relatedIdentifiers":[{"relationType":"IsSupplementTo","relatedIdentifier":"10.1590/1413-812320172211.31102016","relatedIdentifierType":"DOI"}],"relatedItems":[],"sizes":["26624 Bytes"],"formats":[],"version":null,"rightsList":[{"rights":"Creative Commons Attribution 4.0 International","rightsUri":"https://creativecommons.org/licenses/by/4.0/legalcode","schemeUri":"https://spdx.org/licenses/","rightsIdentifier":"cc-by-4.0","rightsIdentifierScheme":"SPDX"}],"descriptions":[{"description":"Abstract The aim of this study was to evaluate the profile and burden of caregivers of children/adolescents with and without Down syndrome. The evaluations were performed through questionnaires about the profile and burden of the caregivers (Zarit Burden Interview) and the profile of the children/adolescents. These questionnaires were applied to 168 caregivers. The chi-square test, Fisher's exact test, and analysis of variance were used with a significance level set at a = 5%. Both groups were composed of 84 participants, and the caregivers of the disabled group had a significantly higher percentage of females (p = 0.001), those in the 41-60 age group (p \u0026lt; 0.001), those who had no occupation (p \u0026lt; 0.001), those with a low per capita income (p \u0026lt; 0.001), those with a low level of schooling (p = 0.021), those who were Catholic in religion (p = 0.001), those who had more health problems (p \u0026lt; 0.001), those who continued the use of medication (p \u0026lt; 0.001), and those with a moderate level of burden (p \u0026lt; 0.001). The children/adolescents with disabilities needed significantly more help for eating (p = 0.051), bathing (p = 0.006), dressing (p = 0.042), sphincter control (p = 0.027), and intimate hygiene (p \u0026lt; 0.001). The caregivers of children/adolescents with Down syndrome presented a moderate burden compared to the caregivers of normoreactive children/adolescents.","descriptionType":"Abstract"}],"geoLocations":[],"fundingReferences":[],"xml":"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","url":"https://scielo.figshare.com/articles/Burden_of_caregivers_of_children_and_adolescents_with_Down_Syndrome/5719342","contentUrl":null,"metadataVersion":1,"schemaVersion":"http://datacite.org/schema/kernel-4","source":"mds","isActive":true,"state":"findable","reason":null,"viewCount":0,"viewsOverTime":[],"downloadCount":0,"downloadsOverTime":[],"referenceCount":0,"citationCount":0,"citationsOverTime":[],"partCount":0,"partOfCount":0,"versionCount":0,"versionOfCount":0,"created":"2017-12-20T02:50:41.000Z","registered":"2017-12-20T02:50:42.000Z","published":"2017","updated":"2020-08-31T05:25:35.000Z"},"relationships":{"client"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