{"data":{"id":"10.4121/20555505","type":"dois","attributes":{"doi":"10.4121/20555505","prefix":"10.4121","suffix":"20555505","identifiers":[],"alternateIdentifiers":[],"creators":[{"name":"Wolkorte, Ria","nameType":"Personal","givenName":"Ria","familyName":"Wolkorte","nameIdentifiers":[{"nameIdentifier":"0000-0002-9647-6753","nameIdentifierScheme":"https://orcid.org/"}],"affiliation":[]},{"name":"Kip, Michelle","givenName":"Michelle","familyName":"Kip","affiliation":[],"nameIdentifiers":[]},{"name":"Heesink, Lieke","nameType":"Personal","givenName":"Lieke","familyName":"Heesink","nameIdentifiers":[{"nameIdentifier":"0000-0002-3652-2164","nameIdentifierScheme":"https://orcid.org/"}],"affiliation":[]}],"titles":[{"title":"The balance between openness and privacy for health data collected through citizen science: various perspectives"}],"publisher":"4TU.ResearchData","container":{},"publicationYear":2022,"subjects":[{"subject":"Other Medical and Health Sciences","subjectScheme":"Australian and New Zealand Standard Research Classification (ANZSRC), 2008","classificationCode":"1199"},{"subject":"FOS: Other medical sciences","schemeUri":"http://www.oecd.org/science/inno/38235147.pdf","subjectScheme":"Fields of Science and Technology (FOS)"},{"subject":"Expanding Knowledge","subjectScheme":"Australian and New Zealand Standard Research Classification (ANZSRC), 2008","classificationCode":"9701"},{"subject":"Rheumatoid arthritis"},{"subject":"FAIR data repository"},{"subject":"Qualitative data sets"},{"subject":"data sharing"},{"subject":"Data Privacy"},{"subject":"citizen science data"},{"subject":"citizen science for health"},{"subject":"Time: December 2021"}],"contributors":[{"name":"University Of Twente, Faculty Of Behavioural, Management And Social Sciences (BMS), Health Technology \u0026 Services Research (HTSR)","nameType":"Organizational","affiliation":[],"contributorType":"Other","nameIdentifiers":[]},{"name":"University Of Twente, Faculty Of Electrical Engineering, Mathematics And Computer Science (EEMCS), Biomedical Signals And Systems (BSS)","nameType":"Organizational","affiliation":[],"contributorType":"Other","nameIdentifiers":[]}],"dates":[{"date":"2022-12-20","dateType":"Issued"}],"language":"nl","types":{"ris":"DATA","bibtex":"misc","citeproc":"dataset","schemaOrg":"Dataset","resourceType":"Dataset","resourceTypeGeneral":"Dataset"},"relatedIdentifiers":[],"relatedItems":[],"sizes":[],"formats":["pdf"],"version":"1","rightsList":[{"rights":"Restrictive Licence","rightsUri":"https://data.4tu.nl/info/fileadmin/user_upload/Documenten/4TU.ResearchData_Restricted_Data_2022.pdf"}],"descriptions":[{"description":"Transcript of a 1.5 hour focus group discussion with 2 citizens, a data steward, an ethicist and a citizen science researcher. The group discussed their willingness to share data collected in citizen science for health projects in repositories, the desired level of openness, and how data sharing policies should be communicated with participants in the research projects. The discussion was held in Dutch, an English translation (translated by the reseachers themselves) is also available. A public summary of the results can be found through this link: https://www.topfitcitizenlab.nl/wp-content/uploads/2022/02/Outcomes-focusgroup-FAIR-and-privacy_english-1.pdf The project was carried out as part of the TOPFIT Citizenlab, a fieldlab focusing on citizen science for health and wellbeing.","descriptionType":"Abstract"}],"geoLocations":[{"geoLocationPlace":"Netherlands"}],"fundingReferences":[{"awardTitle":"4TU.ResearchData FAIR data fund spring 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