{"data":{"id":"10.25384/sage.c.4327481.v1","type":"dois","attributes":{"doi":"10.25384/sage.c.4327481.v1","prefix":"10.25384","suffix":"sage.c.4327481.v1","identifiers":[],"alternateIdentifiers":[],"creators":[{"name":"Camm-Crosbie, Louise","nameType":"Personal","givenName":"Louise","familyName":"Camm-Crosbie","affiliation":[],"nameIdentifiers":[]},{"name":"Bradley, Louise","nameType":"Personal","givenName":"Louise","familyName":"Bradley","affiliation":[],"nameIdentifiers":[]},{"name":"Shaw, Rebecca","nameType":"Personal","givenName":"Rebecca","familyName":"Shaw","affiliation":[],"nameIdentifiers":[]},{"name":"Baron-Cohen, Simon","nameType":"Personal","givenName":"Simon","familyName":"Baron-Cohen","affiliation":[],"nameIdentifiers":[]},{"name":"Cassidy, Sarah","nameType":"Personal","givenName":"Sarah","familyName":"Cassidy","affiliation":[],"nameIdentifiers":[]}],"titles":[{"title":"‘People like me don’t get support’: Autistic adults’ experiences of support and treatment for mental health difficulties, self-injury and suicidality"}],"publisher":"SAGE Journals","container":{},"publicationYear":2018,"subjects":[{"subject":"170199 Psychology not elsewhere classified","subjectScheme":"FOR"},{"subject":"FOS: Psychology","schemeUri":"http://www.oecd.org/science/inno/38235147.pdf","subjectScheme":"Fields of Science and Technology (FOS)"},{"subject":"110319 Psychiatry (incl. Psychotherapy)","subjectScheme":"FOR"},{"subject":"FOS: Clinical medicine","schemeUri":"http://www.oecd.org/science/inno/38235147.pdf","subjectScheme":"Fields of Science and Technology (FOS)"},{"subject":"111799 Public Health and Health Services not elsewhere classified","subjectScheme":"FOR"},{"subject":"FOS: Health sciences","schemeUri":"http://www.oecd.org/science/inno/38235147.pdf","subjectScheme":"Fields of Science and Technology (FOS)"},{"subject":"Education"},{"subject":"130312 Special Education and Disability","subjectScheme":"FOR"},{"subject":"FOS: Educational sciences","schemeUri":"http://www.oecd.org/science/inno/38235147.pdf","subjectScheme":"Fields of Science and Technology (FOS)"}],"contributors":[],"dates":[{"date":"2018-12-07","dateType":"Created"},{"date":"2019-10-03","dateType":"Updated"},{"date":"2018","dateType":"Issued"}],"language":null,"types":{"ris":"GEN","bibtex":"misc","citeproc":"article","schemaOrg":"Collection","resourceType":"Collection","resourceTypeGeneral":"Collection"},"relatedIdentifiers":[{"relationType":"IsSupplementTo","relatedIdentifier":"10.1177/1362361318816053","relatedIdentifierType":"DOI"},{"relationType":"IsIdenticalTo","relatedIdentifier":"10.25384/sage.c.4327481","relatedIdentifierType":"DOI"}],"relatedItems":[],"sizes":[],"formats":[],"version":null,"rightsList":[{"rights":"CC BY 4.0","rightsUri":"https://creativecommons.org/licenses/by/4.0"}],"descriptions":[{"description":"Autistic people are at high risk of mental health problems, self-injury and suicidality. However, no studies have explored autistic peoples’ experiences of treatment and support for these difficulties. In partnership with a steering group of autistic adults, an online survey was developed to explore these individuals’ experiences of treatment and support for mental health problems, self-injury and suicidality for the first time. A total of 200 autistic adults (122 females, 77 males and 1 unreported) aged 18–67 (mean = 38.9 years, standard deviation = 11.5), without co-occurring intellectual disability, completed the online survey. Thematic analysis of open-ended questions resulted in an overarching theme that individually tailored treatment and support was both beneficial and desirable, which consisted of three underlying themes: (1) difficulties in accessing treatment and support; (2) lack of understanding and knowledge of autistic people with co-occurring mental health difficulties and (3) appropriate treatment and support, or lack of, impacted autistic people’s well-being and likelihood of seeing suicide as their future. Findings demonstrate an urgent need for autism treatment pathways in mental health services.","descriptionType":"Abstract"}],"geoLocations":[],"fundingReferences":[],"xml":"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","url":"https://figshare.com/collections/_People_like_me_don_t_get_support_Autistic_adults_experiences_of_support_and_treatment_for_mental_health_difficulties_self-injury_and_suicidality/4327481/1","contentUrl":null,"metadataVersion":4,"schemaVersion":"http://datacite.org/schema/kernel-4","source":"mds","isActive":true,"state":"findable","reason":null,"viewCount":0,"viewsOverTime":[],"downloadCount":0,"downloadsOverTime":[],"referenceCount":0,"citationCount":0,"citationsOverTime":[],"partCount":0,"partOfCount":0,"versionCount":0,"versionOfCount":0,"created":"2018-12-07T14:12:06.000Z","registered":"2018-12-07T14:12:07.000Z","published":"2018","updated":"2024-08-28T06:23:08.000Z"},"relationships":{"client":{"data":{"id":"sage.journals","type":"clients"}},"provider":{"data":{"id":"sage","type":"providers"}},"media":{"data":{"id":"10.25384/sage.c.4327481.v1","type":"media"}},"references":{"data":[]},"citations":{"data":[]},"parts":{"data":[]},"partOf":{"data":[]},"versions":{"data":[]},"versionOf":{"data":[]}}}}