{"data":{"id":"10.25384/sage.c.4255931.v1","type":"dois","attributes":{"doi":"10.25384/sage.c.4255931.v1","prefix":"10.25384","suffix":"sage.c.4255931.v1","identifiers":[],"alternateIdentifiers":[],"creators":[{"name":"Ayres, Michael","nameType":"Personal","givenName":"Michael","familyName":"Ayres","affiliation":[],"nameIdentifiers":[]},{"name":"Parr, Jeremy R","nameType":"Personal","givenName":"Jeremy R","familyName":"Parr","affiliation":[],"nameIdentifiers":[]},{"name":"Rodgers, Jacqui","nameType":"Personal","givenName":"Jacqui","familyName":"Rodgers","affiliation":[],"nameIdentifiers":[]},{"name":"Mason, David","nameType":"Personal","givenName":"David","familyName":"Mason","affiliation":[],"nameIdentifiers":[]},{"name":"Avery, Leah","nameType":"Personal","givenName":"Leah","familyName":"Avery","affiliation":[],"nameIdentifiers":[]},{"name":"Flynn, Darren","nameType":"Personal","givenName":"Darren","familyName":"Flynn","affiliation":[],"nameIdentifiers":[]}],"titles":[{"title":"A systematic review of quality of life of adults on the autism\n          spectrum"}],"publisher":"Figshare","container":{},"publicationYear":2017,"subjects":[{"subject":"170199 Psychology not elsewhere classified","subjectScheme":"FOR"},{"subject":"FOS: Psychology","schemeUri":"http://www.oecd.org/science/inno/38235147.pdf","subjectScheme":"Fields of Science and Technology (FOS)"},{"subject":"110319 Psychiatry (incl. Psychotherapy)","subjectScheme":"FOR"},{"subject":"FOS: Clinical medicine","schemeUri":"http://www.oecd.org/science/inno/38235147.pdf","subjectScheme":"Fields of Science and Technology (FOS)"},{"subject":"111799 Public Health and Health Services not elsewhere classified","subjectScheme":"FOR"},{"subject":"FOS: Health sciences","schemeUri":"http://www.oecd.org/science/inno/38235147.pdf","subjectScheme":"Fields of Science and Technology (FOS)"},{"subject":"Education"},{"subject":"130312 Special Education and Disability","subjectScheme":"FOR"},{"subject":"FOS: Educational sciences","schemeUri":"http://www.oecd.org/science/inno/38235147.pdf","subjectScheme":"Fields of Science and Technology (FOS)"}],"contributors":[],"dates":[{"date":"2018-10-05","dateType":"Created"},{"date":"2018-10-05","dateType":"Updated"},{"date":"2017","dateType":"Issued"}],"language":null,"types":{"ris":"GEN","bibtex":"misc","citeproc":"article","schemaOrg":"Collection","resourceType":"Collection","resourceTypeGeneral":"Collection"},"relatedIdentifiers":[{"relationType":"IsSupplementTo","relatedIdentifier":"10.1177/1362361317714988","relatedIdentifierType":"DOI"},{"relationType":"IsIdenticalTo","relatedIdentifier":"10.25384/sage.c.4255931","relatedIdentifierType":"DOI"}],"relatedItems":[],"sizes":[],"formats":[],"version":null,"rightsList":[{"rights":"CC BY 4.0","rightsUri":"https://creativecommons.org/licenses/by/4.0"}],"descriptions":[{"description":"Autism spectrum disorder is associated with co-existing conditions that may adversely\n          affect an individual’s quality of life. No systematic review of quality of life of adults\n          on the autism spectrum has been conducted. Our objectives were as follows: (1) review the\n          evidence about quality of life for adults on the autism spectrum; (2) critically appraise\n          current practice in assessing quality of life of adults on the autism spectrum. We\n          searched bibliographic databases and other literature to identify studies using a direct\n          measure of quality of life of adults on the autism spectrum. Hand searching of reference\n          lists, citation searching and personal communication with field experts were also\n          undertaken. In total, 827 studies were identified; 14 were included. Only one quality of\n          life measure designed for use with the general autism spectrum population was identified.\n          Quality of life of adults on the autism spectrum is lower than that of typically\n          developing adults, when measured with tools designed for the general population. There are\n          no comprehensive autism spectrum disorder–specific quality of life measurement tools\n          validated for use with representative samples of adults on the autism spectrum. There is a\n          pressing need to develop robust measures of quality of life of autistic adults.","descriptionType":"Abstract"}],"geoLocations":[],"fundingReferences":[],"xml":"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