{"data":{"id":"10.25384/sage.c.4090316","type":"dois","attributes":{"doi":"10.25384/sage.c.4090316","prefix":"10.25384","suffix":"sage.c.4090316","identifiers":[],"alternateIdentifiers":[],"creators":[{"name":"Kuo-Yu Chao","affiliation":[],"nameIdentifiers":[]},{"name":"Hsueh-Ling Chang","affiliation":[],"nameIdentifiers":[]},{"name":"Wei-Chih Chin","affiliation":[],"nameIdentifiers":[]},{"name":"Hsin-Mei Li","affiliation":[],"nameIdentifiers":[]},{"name":"Sue-Hsien Chen","affiliation":[],"nameIdentifiers":[]}],"titles":[{"title":"How Taiwanese parents of children with autism spectrum disorder experience\n          the process of obtaining a diagnosis: A descriptive phenomenological\n          analysis"}],"publisher":"Figshare","container":{},"publicationYear":2017,"subjects":[{"subject":"Education"},{"subject":"110319 Psychiatry (incl. Psychotherapy)","subjectScheme":"FOR"},{"subject":"FOS: Clinical medicine","schemeUri":"http://www.oecd.org/science/inno/38235147.pdf","subjectScheme":"Fields of Science and Technology (FOS)"},{"subject":"111799 Public Health and Health Services not elsewhere classified","subjectScheme":"FOR"},{"subject":"FOS: Health sciences","schemeUri":"http://www.oecd.org/science/inno/38235147.pdf","subjectScheme":"Fields of Science and Technology (FOS)"},{"subject":"170199 Psychology not elsewhere classified","subjectScheme":"FOR"},{"subject":"FOS: Psychology","schemeUri":"http://www.oecd.org/science/inno/38235147.pdf","subjectScheme":"Fields of Science and Technology (FOS)"},{"subject":"130312 Special Education and Disability","subjectScheme":"FOR"},{"subject":"FOS: Educational sciences","schemeUri":"http://www.oecd.org/science/inno/38235147.pdf","subjectScheme":"Fields of Science and Technology (FOS)"}],"contributors":[],"dates":[{"date":"2018-05-04","dateType":"Created"},{"date":"2018-05-04","dateType":"Updated"},{"date":"2017","dateType":"Issued"}],"language":null,"types":{"ris":"GEN","bibtex":"misc","citeproc":"article","schemaOrg":"Collection","resourceType":"Collection","resourceTypeGeneral":"Collection"},"relatedIdentifiers":[{"relationType":"IsSupplementTo","relatedIdentifier":"10.1177/1362361316680915","relatedIdentifierType":"DOI"}],"relatedItems":[],"sizes":[],"formats":[],"version":null,"rightsList":[{"rights":"CC BY 4.0","rightsUri":"https://creativecommons.org/licenses/by/4.0"}],"descriptions":[{"description":"An autism spectrum disorder can result in considerable stress and confusion for parents\n          as they attempt to understand their child’s problems and obtain a diagnosis. Few studies\n          have explored the parental experience in the context of Chinese culture. The purpose of\n          this study was to understand the experiences of parents in Taiwan of children diagnosed\n          with autism spectrum disorder. In total, 15 parents, 1 father and 14 mothers, were\n          recruited by purposive sampling. This qualitative study used semi-structured interviews\n          and descriptive phenomenological analysis. The findings indicated that parents of children\n          diagnosed with autism spectrum disorder underwent five coping experiences during the\n          diagnostic process: (1) uncertainty and difficulty understanding their child’s behaviour,\n          which occurred during the pre-diagnosis phase; (2) obligation to obtain professional\n          services; (3) anxious searching for a second opinion, which occurred during the diagnosis\n          phase; (4) acceptance and fortitude and (5) further adjustment during the post-diagnosis\n          phase. Our findings add to our understanding of how parents experience the diagnostic\n          process, which could improve medical professionals’ counselling and support for parents at\n          the stage of obtaining a diagnosis for their children.","descriptionType":"Abstract"}],"geoLocations":[],"fundingReferences":[],"xml":"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","url":"https://figshare.com/collections/How_Taiwanese_parents_of_children_with_autism_spectrum_disorder_experience__the_process_of_obtaining_a_diagnosis_A_descriptive_phenomenological__analysis/4090316","contentUrl":null,"metadataVersion":1,"schemaVersion":"http://datacite.org/schema/kernel-3","source":"api","isActive":true,"state":"findable","reason":null,"viewCount":0,"viewsOverTime":[],"downloadCount":0,"downloadsOverTime":[],"referenceCount":1,"citationCount":0,"citationsOverTime":[],"partCount":0,"partOfCount":0,"versionCount":0,"versionOfCount":0,"created":"2018-05-04T17:00:33.000Z","registered":"2018-05-04T17:00:34.000Z","published":"2017","updated":"2024-08-28T04:35:08.000Z"},"relationships":{"client":{"data":{"id":"sage.journals","type":"clients"}},"provider":{"data":{"id":"sage","type":"providers"}},"media":{"data":{"id":"10.25384/sage.c.4090316","type":"media"}},"references":{"data":[{"id":"10.1177/1362361316680915","type":"dois"}]},"citations":{"data":[]},"parts":{"data":[]},"partOf":{"data":[]},"versions":{"data":[]},"versionOf":{"data":[]}}}}