{"data":{"id":"10.25384/sage.c.4074560","type":"dois","attributes":{"doi":"10.25384/sage.c.4074560","prefix":"10.25384","suffix":"sage.c.4074560","identifiers":[],"alternateIdentifiers":[],"creators":[{"name":"Hickey, Aoife","nameType":"Personal","givenName":"Aoife","familyName":"Hickey","affiliation":[],"nameIdentifiers":[]},{"name":"Crabtree, Jason","nameType":"Personal","givenName":"Jason","familyName":"Crabtree","affiliation":[],"nameIdentifiers":[]},{"name":"Stott, Joshua","nameType":"Personal","givenName":"Joshua","familyName":"Stott","affiliation":[],"nameIdentifiers":[]}],"titles":[{"title":"‘Suddenly the first fifty years of my life made sense’: Experiences of older\n          people with autism"}],"publisher":"Figshare","container":{},"publicationYear":2017,"subjects":[{"subject":"Education"},{"subject":"110319 Psychiatry (incl. Psychotherapy)","subjectScheme":"FOR"},{"subject":"FOS: Clinical medicine","schemeUri":"http://www.oecd.org/science/inno/38235147.pdf","subjectScheme":"Fields of Science and Technology (FOS)"},{"subject":"111799 Public Health and Health Services not elsewhere classified","subjectScheme":"FOR"},{"subject":"FOS: Health sciences","schemeUri":"http://www.oecd.org/science/inno/38235147.pdf","subjectScheme":"Fields of Science and Technology (FOS)"},{"subject":"170199 Psychology not elsewhere classified","subjectScheme":"FOR"},{"subject":"FOS: Psychology","schemeUri":"http://www.oecd.org/science/inno/38235147.pdf","subjectScheme":"Fields of Science and Technology (FOS)"},{"subject":"130312 Special Education and Disability","subjectScheme":"FOR"},{"subject":"FOS: Educational sciences","schemeUri":"http://www.oecd.org/science/inno/38235147.pdf","subjectScheme":"Fields of Science and Technology (FOS)"}],"contributors":[],"dates":[{"date":"2018-04-19","dateType":"Created"},{"date":"2018-04-19","dateType":"Updated"},{"date":"2017","dateType":"Issued"}],"language":null,"types":{"ris":"GEN","bibtex":"misc","citeproc":"article","schemaOrg":"Collection","resourceType":"Collection","resourceTypeGeneral":"Collection"},"relatedIdentifiers":[{"relationType":"IsSupplementTo","relatedIdentifier":"10.1177/1362361316680914","relatedIdentifierType":"DOI"}],"relatedItems":[],"sizes":[],"formats":[],"version":null,"rightsList":[{"rights":"CC BY 4.0","rightsUri":"https://creativecommons.org/licenses/by/4.0"}],"descriptions":[{"description":"Research on the experience of growing older with autism is very limited. In this study,\n          13 people with autism aged over 50 years participated in semi-structured interviews about\n          their experiences of diagnosis, social support and getting older. Interviews were analysed\n          using thematic analysis. Three overarching themes were generated: difference, life review\n          and longing for connection. Prior to diagnosis, individuals had awareness of their\n          difficulties, attributed these to intrinsic difference and engaged in a deliberate process\n          of reducing the visibility of this difference. Diagnosis prompted a process of life review\n          and externalisation, whereby past negative experiences were reattributed to autism as\n          opposed to the self. Loneliness, isolation and yearning for interpersonal connection were\n          ubiquitous and longstanding. Autism support and social groups were highly valued, offering\n          opportunities for belonging, acceptance and social comparison. Results highlight the\n          similarity to younger age groups in terms of lived experience and need for greater\n          support, particularly with respect to reducing isolation and improving access to\n          diagnosis.","descriptionType":"Abstract"}],"geoLocations":[],"fundingReferences":[],"xml":"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","url":"https://figshare.com/collections/_Suddenly_the_first_fifty_years_of_my_life_made_sense_Experiences_of_older__people_with_autism/4074560","contentUrl":null,"metadataVersion":1,"schemaVersion":"http://datacite.org/schema/kernel-3","source":"api",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