{"data":{"id":"10.25384/sage.c.4074485.v1","type":"dois","attributes":{"doi":"10.25384/sage.c.4074485.v1","prefix":"10.25384","suffix":"sage.c.4074485.v1","identifiers":[],"alternateIdentifiers":[],"creators":[{"name":"Miller, Kaitlin H Koffer","nameType":"Personal","givenName":"Kaitlin H Koffer","familyName":"Miller","affiliation":[],"nameIdentifiers":[]},{"name":"Mathew, Mary","nameType":"Personal","givenName":"Mary","familyName":"Mathew","affiliation":[],"nameIdentifiers":[]},{"name":"Nonnemacher, Stacy L","nameType":"Personal","givenName":"Stacy L","familyName":"Nonnemacher","affiliation":[],"nameIdentifiers":[]},{"name":"Shea, Lindsay L","nameType":"Personal","givenName":"Lindsay L","familyName":"Shea","affiliation":[],"nameIdentifiers":[]}],"titles":[{"title":"Program experiences of adults with autism, their families, and providers:\n          Findings from a focus group study"}],"publisher":"Figshare","container":{},"publicationYear":2017,"subjects":[{"subject":"Education"},{"subject":"110319 Psychiatry (incl. Psychotherapy)","subjectScheme":"FOR"},{"subject":"FOS: Clinical medicine","schemeUri":"http://www.oecd.org/science/inno/38235147.pdf","subjectScheme":"Fields of Science and Technology (FOS)"},{"subject":"111799 Public Health and Health Services not elsewhere classified","subjectScheme":"FOR"},{"subject":"FOS: Health sciences","schemeUri":"http://www.oecd.org/science/inno/38235147.pdf","subjectScheme":"Fields of Science and Technology (FOS)"},{"subject":"170199 Psychology not elsewhere classified","subjectScheme":"FOR"},{"subject":"FOS: Psychology","schemeUri":"http://www.oecd.org/science/inno/38235147.pdf","subjectScheme":"Fields of Science and Technology (FOS)"},{"subject":"130312 Special Education and Disability","subjectScheme":"FOR"},{"subject":"FOS: Educational sciences","schemeUri":"http://www.oecd.org/science/inno/38235147.pdf","subjectScheme":"Fields of Science and Technology (FOS)"}],"contributors":[],"dates":[{"date":"2018-04-19","dateType":"Created"},{"date":"2018-04-19","dateType":"Updated"},{"date":"2017","dateType":"Issued"}],"language":null,"types":{"ris":"GEN","bibtex":"misc","citeproc":"article","schemaOrg":"Collection","resourceType":"Collection","resourceTypeGeneral":"Collection"},"relatedIdentifiers":[{"relationType":"IsSupplementTo","relatedIdentifier":"10.1177/1362361316679000","relatedIdentifierType":"DOI"},{"relationType":"IsIdenticalTo","relatedIdentifier":"10.25384/sage.c.4074485","relatedIdentifierType":"DOI"}],"relatedItems":[],"sizes":[],"formats":[],"version":null,"rightsList":[{"rights":"CC BY 4.0","rightsUri":"https://creativecommons.org/licenses/by/4.0"}],"descriptions":[{"description":"A growing number of individuals with autism spectrum disorder are aging into adulthood.\n          In the United States, Medicaid is the primary payer for services for adults with autism\n          spectrum disorder, yet there are few funded programs that provide dedicated supports to\n          this population. This study examined the experiences of adults with autism spectrum\n          disorder in two Medicaid-funded programs in Pennsylvania through focus groups. Researchers\n          conducted 20 focus groups with a total of 36 adults with autism spectrum disorder, 32\n          family members, 32 direct care staff, and 20 program administrators. Using thematic\n          analysis, we identified three themes: training needs, community engagement and\n          socialization, and employment. There was a need for additional training to meet the\n          varying needs of program participants including co-occurring diagnoses, sexuality, and\n          long-term planning. Adults with autism spectrum disorder prioritized more individualized\n          community activities based on their interests. Finally, barriers to and strategies for\n          successful employment were discussed. It will be crucial for policy makers to utilize the\n          findings to inform program improvement and development based on the experiences of\n          individuals impacted by these services and systems directly. Additionally, researchers\n          should use the findings from this study to design interventions for adults with autism\n          spectrum disorder as it includes their voices.","descriptionType":"Abstract"}],"geoLocations":[],"fundingReferences":[],"xml":"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