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Ninety UK-resident adults with Usher syndrome were recruited through deafblind-related charities, support groups and social groups. All participants took part in a survey that measured their physical and mental HRQOL, depressive symptoms, loneliness and social support. Measured confounders included age, sex and health-related characteristics. Hierarchical multiple linear regression analyses examined the association of each psychosocial wellbeing indicator with both physical and mental HRQOL while controlling for confounders in a stepwise manner.","descriptionType":"Abstract"}],"geoLocations":[],"fundingReferences":[],"xml":"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","url":"https://brunel.figshare.com/articles/dataset/Usher_syndrome_study_sav/3452762/1","contentUrl":null,"metadataVersion":3,"schemaVersion":"http://datacite.org/schema/kernel-4","source":"mds","isActive":true,"state":"findable","reason":null,"viewCount":8,"viewsOverTime":[{"yearMonth":"2025-05","total":1},{"yearMonth":"2025-07","total":1},{"yearMonth":"2025-10","total":5},{"yearMonth":"2026-08","total":1}],"downloadCount":0,"downloadsOverTime":[{"yearMonth":"2025-05","total":0},{"yearMonth":"2025-07","total":0},{"yearMonth":"2025-10","total":0},{"yearMonth":"2026-08","total":0}],"referenceCount":0,"citationCount":0,"citationsOverTime":[],"partCount":0,"partOfCount":0,"versionCount":0,"versionOfCount":0,"created":"2016-07-14T12:08:35.000Z","registered":"2016-07-14T12:08:36.000Z","published":"2016","updated":"2025-06-01T07:34:33.000Z"},"relationships":{"client":{"data":{"id":"bl.brunel","type":"clients"}},"provider":{"data":{"id":"genm","type":"providers"}},"media":{"data":{"id":"10.17633/rd.brunel.3452762.v1","type":"media"}},"references":{"data":[]},"citations":{"data":[]},"parts":{"data":[]},"partOf":{"data":[]},"versions":{"data":[]},"versionOf":{"data":[]}}}}