{"data":{"id":"10.17026/ss/m4b6hq","type":"dois","attributes":{"doi":"10.17026/ss/m4b6hq","prefix":"10.17026","suffix":"ss/m4b6hq","identifiers":[],"alternateIdentifiers":[],"creators":[{"name":"A. Moser","nameType":"Personal","affiliation":["Maastricht University"],"nameIdentifiers":[{"schemeUri":"https://orcid.org","nameIdentifier":"https://orcid.org/0000-0003-4073-2890","nameIdentifierScheme":"ORCID"}]}],"titles":[{"title":"Partners in palliatieve care. Integrated advanced care planning with a first contact person."},{"title":"Advanced care planning","titleType":"Subtitle"}],"publisher":"DANS Data Station Social Sciences and Humanities","container":{},"publicationYear":2024,"subjects":[{"subject":"Medicine, Health and Life Sciences"},{"subject":"qualitative"}],"contributors":[{"name":"Albine Moser","nameType":"Personal","givenName":"Albine","familyName":"Moser","affiliation":["Maastrichtuniversity"],"contributorType":"Producer","nameIdentifiers":[]},{"name":"Moser Albine","nameType":"Personal","affiliation":["Maastricht University"],"contributorType":"Distributor","nameIdentifiers":[]},{"name":"Moser, Albine","nameType":"Personal","givenName":"Albine","familyName":"Moser","affiliation":["Department of Family PracticeFHML"],"contributorType":"ContactPerson","nameIdentifiers":[]},{"name":"Moser Albine","nameType":"Personal","contributorType":"Supervisor","affiliation":[],"nameIdentifiers":[]}],"dates":[{"date":"2024-02-01","dateType":"Issued"},{"date":"2024-02-01","dateType":"Created"},{"date":"2024-02-02","dateType":"Submitted"},{"date":"2024-02-20","dateType":"Available"},{"date":"2026-08-28","dateType":"Updated"},{"date":"2024-09-01/2027-10-01","dateType":"Collected"},{"date":"2024-06-01/2027-12-01","dateType":"Other","dateInformation":"Time period covered by the data"}],"language":null,"types":{"ris":"DATA","bibtex":"misc","citeproc":"dataset","schemaOrg":"Dataset","resourceType":"quantiative and qualitative data","resourceTypeGeneral":"Dataset"},"relatedIdentifiers":[],"relatedItems":[],"sizes":["128939"],"formats":["application/pdf"],"version":"1.1","rightsList":[{"rightsUri":"info:eu-repo/semantics/openAccess"},{"lang":"en","rights":"Creative Commons Attribution Non Commercial Share Alike 4.0 International","rightsUri":"https://creativecommons.org/licenses/by-nc-sa/4.0/legalcode","schemeUri":"https://spdx.org/licenses/","rightsIdentifier":"cc-by-nc-sa-4.0","rightsIdentifierScheme":"SPDX"}],"descriptions":[{"description":"\u0026lt;p\u0026gt;The goal of the research project is first, to improve the quality of advanced care planning, second, to gain insights into the process of implementation of integrated advanced care planning with a first contact person and its impact, and third to improve the interprofessional community of practice between health and social care professionals, citizens and volunteers.\u0026lt;/p\u0026gt;\n\n\u0026lt;p\u0026gt;The project has a participatory action design. Participants are people who need palliative care, family carers, health and social care professionals, citizens and volunteers.\u0026lt;br\u0026gt;\nThe research process has five phases:\u0026lt;br\u0026gt;\nPhase 1: Gaining knowledge of the characteristics of people who need palliative care, their care wishes and needs based pm the four dimensions of palliative care.\u0026lt;br\u0026gt;\nPhase 2: Gaining insights into the formal and informal care arrangements\u0026lt;br\u0026gt;\nPhase 3: Desiging an integrated advanced care planning with a first contact person.\u0026lt;br\u0026gt;\nPhase 4: Piloting and implementing the newly-designed integrated advanced care planning with a first contact person.\u0026lt;br\u0026gt;\nPhase 5: Evaluating the pilot-implementation, quality of care and implementation process. \u0026lt;/p\u0026gt;\n\n\u0026lt;p\u0026gt;Collaborating partner are: Maastricht University, Zorgnetwerk Elsloo and Zuyd University of Applied Sciences.\u0026lt;/p\u0026gt;","descriptionType":"Abstract"},{"description":"AtlasTi","descriptionType":"TechnicalInfo"}],"geoLocations":[{"geoLocationPlace":"Netherland"}],"fundingReferences":[{"funderName":"ZonMw","awardNumber":"10200012310006"}],"xml":"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